I just saw a thing on my dash with gifs of Jensen Ackles in a movie with like green hair and stubble and a labret piercing, and I have no idea what the hell it was from, but sweet Mercedes-Benz on toast did he look HOT.
Michael Cera with a moustache is the most terrifying thing I’ve seen since Michael Cera without a moustache.
Yeah, I don’t think its right that they specifically named you along with others. I have no advice on a possible response, but I would at least address the fact that they singled a few people out. That’s not right.
Umm, does this random person have ANY power over your personal/professional life? If not, ignore.
Well, the problem (as climbthroughthetide pointed out above, and mercury-diva did earlier too) is that I was called out by name. I’ve spoken to Kerry, the other individual who was mentioned in the post, and he agrees with me that that is problematic. It’s one thing for individuals on the spectrum to have issues with the organization of Autism Speaks. That’s completely understandable and acceptable. But when specific people within the organization are called out by name, that’s not acceptable. It’s giving people specific individuals to target, and it’s how witch hunts end up getting started. So I think that it should be addressed, somehow, and I am currently trying to write a response on my own blog.
This post is from Amy Gravino, a member of our Communications Committee here at Autism Speaks. Her blog is part of an ongoing series on our site called “In Our Own Words: Living on the Spectrum,” which highlights the experiences of individuals with autism.
New blog post written by me about women, autism, and anger. If you read it and enjoy it, please ‘like’ or reblog. Thank you!
i don’t support autism speaks either, but i don’t think you should have been called out by name. ask the author to remove any mention of you, maybe? i’m really not sure.
I wouldn’t respond. If you do, they’re going to come back with more. Some people can’t be won. Just keep doing what you do.
The great irony is that I wrote this post here on my Tumblr just two days ago, which covers pretty much everything that I would say if I were to respond. I feel like my head is on the proverbial chopping block now…and the author just Tweeted it at me again. I suppose I could respond on my actual blog and tweet the link back at them. Ugh…
This post was Tweeted at my Twitter a little while ago, and it was also posted on my Facebook fan page by the author just now. I don’t know how or if I should respond. Help me, please? :\
Life Fact #49862: Never trust lawyers who use a jingle in their TV commercials or people who actually iron their jeans.
I don’t know THIS Drama, but I do know Drama (library orgs are lousy with it). Get off Facebook, tune it all out for a day or two, vent to uninvolved friends and watch some bad TV. Then ask yourself, “what is healthiest for ME?” That’s your answer.
Oh gosh, it’s awful to be so close to the problem that you can’t see the shape of it all—or the way to a solution. I wish I could help, but all I can offer is a virtual hug. Keep up the good fight, your voice is precious.
Thank you both so much. <3 I’ve just felt like I have no one to talk to about this because everyone in the autism world is on one side or another, so nobody’s really completely objective. I do have friends who aren’t in the autism world, but I feel like I don’t want to burden them with this. So I just needed to unload. And bluemoon, thank you for saying that my voice is precious…I was starting to feel like I was drowning and that I could only muster the barest squeak from my throat…but you’ve reminded me that what I have to say does matter and I have to keep plowing ahead, no matter what.
I don’t know where else to write about this, and I can’t keep it bottled up inside anymore. I feel like I’m slowly losing the tethers of my mind and that no matter what I do, I am going to be judged or someone is going to hate me.
A few minutes ago, I saw a post on my dash about Autism Speaks. It’s a post I have seen before, and it details all of the terrible things Autism Speaks has done to people on the spectrum and why folks shouldn’t support Autism Speaks or their corporate partners. None of the information in the post is inaccurate, and it’s nothing I haven’t known for a while now.
But here I am, a person on the spectrum and self-advocate, and a member of the Communications Committee of Autism Speaks—a committee I joined because I believed it was a good opportunity and my chance to work from the inside to make changes to the organization. Here I am, and every time I see that post, it makes me hate myself by gradually increasing increments.
The thing about that post is that by the nature of the language and viewpoint presented in it, it comes across as very black-and-white. The reality, however, is that there is a whole lot of grey. Things are never as simple as we’d like them to be, and I feel like I have this front-row seat to it because of my position. And it’s killing me.
When I first became involved with Autism Speaks, I felt amazed to have the opportunities that I had—opportunities for myself and for potentially helping other people on the autism spectrum. Two years ago, on World Autism Awareness Day, I spoke on a panel at the United Nations in New York City. I was the only self-advocate on the panel, and my speech received the longest amount of applause of the four speakers. That would never have happened without Autism Speaks.
I am also involved with other autism organizations to varying degrees, including being a member of the Board of Directors of GRASP, and so I know the difficulties that have arisen when attempts have been made to create a dialogue with Autism Speaks. I know that there is this massiveness, this “bubble” around the organization that, because they are so highly visible, clouds their ability to see others around them.
I know it creates denial when something is wrong, and that is why I have continued to stay on the committee—to be that voice that they would otherwise never hear. I have an unfathomable task, and that is to speak for untold numbers of people on the spectrum. To the best of my ability, I represent them on that committee, and make damn sure our voices and concerns are heard.
It is not easy. The criticism I received in the wake of John Elder Robison’s resignations took me aback more than I imagined possible. I’ve had my decision to continue working with Autism Speaks compared to being in an abusive relationship—an analogy that I think is extremely problematic, not to mention damaging to actual victims of abuse.
Yet nothing compares to the criticism I give to myself. How torn up inside I feel, how unsure I am of what is right or what is wrong…how I don’t know if I can ever feel certain of what I am doing or who I am supporting. It’s as though I’m slipping down an icy mountainside and there are several brightly-colored bungee cords being lowered to help me up to safety…but I don’t know which one to take.
And by the time I decide, it might just be too late for me to help anyone at all…or myself.
welcome to my weird sexually confusing life
Like, I look at him, and my brain is all, “Well, you’re old, and British, and on the one hand I think you’re adorable, but on the other, I think we should have sex pretty much right now, that is if you’re cool with getting down with a slightly wacky younger American chick.” It’s an interesting process. Haha.